Every Australian Counts – but what can I do?

What can I do? How can I help? I have so little time, I have no skills, I’m not a sales person…

The NDIS is a cause whose time has come, but to get government to take this crucial step in overhauling a disability services system that is catastrophically failing so many Australians, we need numbers. We need people to put up their hands, to say “I support this idea”, and all that means is adding their name and email address to the website. So, here are a few ideas of things that you can do to help get those numbers. Whether it’s an email to friends or a morning tea, an article in the school newsletter or a presentation at the P&C meeting, every little bit helps.

The Little Things that make a difference:

• Write an email to everyone in your contacts list asking them to log onto the Every Australian Counts website, to register and then to pass this email on to everyone in their contact list.
• Put up information posters on your local community notice boards in libraries, shopping centres, scout halls, community centres, coffee shops, etc – don’t forget to ask management for permission!
• Use the local community groups you are involved with to best advantage:

 – Collect registrations on the EAC postcards at your playgroup, sporting club, school P&C meeting, church group, etc.

– Put an article in the newsletter.

– Combine fundraising efforts with “awareness raising” – A bake sale that raises money for the club where each item sold has an EAC registration card attached.

– Encourage each parent to register on the EAC website on the permission slip for the school disco

 
• Use the opportunities your work place presents:

 – Leave registration postcards and information in the common room

– Send an email via the intranet

– Arrange a workplace morning tea and ask each person to register as they arrive/leave

– Place an article in the weekly bulletin

The Medium-Sized Things that make a difference:

• Hold a stall at your local markets with information fliers, T-shirts, bumper stickers and registration cards. You can get them by contacting your state coordinator.
• Engage your local media with your personal story:

 – a letter to the editor, a feature story, an opinion piece, etc

– select a section of the paper that you feel is relevant to your story, for example, if your daughter is a disabled swimmer, contact the sports editor; if you are a student at the local university, write for the education section; if you are a disability services provider, approach the community news journalists, etc.
• Arrange to give a presentation at your local community group about the NDIS and You – the key here is to personalise the message so you become an inspiring ambassador. Many schools, charity groups such as Rotary and Lions clubs, church groups and youth groups are interested in hearing from inspiring role models with an urgent message.
• Create an NDIS Team to participate in local events like fun runs, triathlons, bike rides, swim-a-thons, etc… or Join the Sydney City to Surf team – NDIS NOW!

The Big Things that make a difference:

• Make a presentation to your local council:

 – Contact the community liaison department and discuss the best forum for this. It may be at a council meeting, at a public forum, or a private submission to the General Manager and/or the Mayor. Be clear on what you would like them to do: host an event; to be included in the program for an even already planned; awareness raising through rates notices mail out; letters of support to local members of parliament

• Letter box drop of the houses in your local area
• Organise an event like a family picnic day, a concert, a celebrity soccer match to promote the EAC campaign and to engage the local media
• Approach local sporting heroes, celebrities, radio station hosts, etc for their support:

 – Just like the council, make sure you are clear about what you want them to do to help promote the campaign –  Airtime on their radio program; endorsement of the campaign in media appearances; Mentioning the campaign website in interviews, on air, at concerts, etc; Wearing the EAC t-shirt or badge at events

• Approach local companies for support:

 – Again, be clear on what you want – Website links to the campaign website; Banner displays in shop fronts or offices; Branding (like the pink ribbon campaign) on selected goods; Post card display on shop counter… (the key with these big strategies is not to bite off more than anybody can chew. Gauge your level of influence carefully – if you have known the store manager personally for years, ask for the world, but if you’re cold-calling, keep your requests modest – you can always build on a counter-top post card display, but you can’t turn a flat ‘no’ to a ‘yes’). 

No matter what you choose to do, do it with passion, with enthusiasm and with belief. No matter how you choose approach spreading the word, make it personal. No matter what level you feel you can contribute at, know you will be helping to bring about a change for the better in the lives of millions.

People are animals too

Cows have been getting a lot of press lately. Specifically, animals that are being exported live to places where standards of slaughter are brutal at best. The ghastly images from 4 Corners are all over the papers, they’re pouring into my inbox and they make me sick. No creature should have to endure that kind of torture and I wholeheartedly support any legislation that will offer some kind of protection to animals that are helpless in the face of such human brutality.

But this week’s outcry against the barbaric treatment of animals has had me feeling… I don’t know, kind of frustrated. I’m not frustrated at my own powerlessness or at the fact that such inhumane practices still exist (and flourish) in other parts of the world, but I couldn’t quite put my finger on exactly what was making me so uneasy until today.

You see, after Monday night’s 4 Corners story, I was stewing over the graphic images of those pitiful doe-eyed creatures with their velvety noses and big floppy ears being tortured in blood-smeared rooms when I checked my email for the four-hundredth time in a week. I was looking for a response to an email I had sent to the director of the Every Australian Counts campaign for an NDIS some 12 days previously.

Having had a bit of experience in promoting stuff, doing events, yadda-yadda, and having had some (if I do say so myself) pretty kick-arse ideas and strategies for getting maximum bang for minimum buck to spread the word to millions, I decided to whip together a proposal and send it to the boss – a promotion strategy on a platter where, by the boss’ own admission, there was no real strategy.

Did I get a response? No. Nothing. Not even a “Thanks for your email. We’ll be in touch.” Total, resounding silence that could only mean one of two things – a) he thinks I’m a nutter who needs to be steered clear of, or b) he never got the email because he is on holidays (it’s called auto-response) or the evil internet ether virus swallowed it whole and sent it directly to spam. Either way, I began to stew. Time is a-wasting…

So I sent another email to another one of the campaign team with a call to action and a number of questions. Again, no response. Silence on the airwaves. Grrrr.

The next day I registered for the Sydney City to Surf and decided, heck, I’ll action part A of one of my grand plans regardless of ‘approval’ from the campaign team. My idea was to gather together the largest ever team registered for the Sydney City to Surf, get each person in a red NDIS NOW t-shirt, fill the event with the message that the disability services system needs change now and that now is our chance to make that happen. But when it came time to choose my charity, the campaign was nowhere to be found. Why?

So I sent another email, and as I scanned my inbox for that elusive response, there were the cows, bleating madly all over my inbox and Facebook page. Dozens of invitations to send letters of disgust, to sign online petitions, to click if you’re outraged. And it struck me: the outpouring of concern for animals that were, let’s face it, born and bred for slaughter (of a humane kind, granted, but dinner plates and hand bags none the less) screamed against the stark silence from those who were meant to be driving the campaign for an NDIS. Why?

Is it because those whose passion lies in animal welfare are just better at the publicity thing? Do they have more campaign funds at their disposal? Is it because the bill is before parliament and there will be an equal uprising for disability in July when the Productivity Commission delivers their final report on an NDIS to government? I doubt it.

Perhaps it is because of what I call the “fuzzy factor”. Animals are cute. They are easy to love. But there is noting cute or easy to love about disability. It is confronting and uncomfortable and painful to look at no matter what angle you tackle it from. So, in the same way that we casually spray poison gas at a cockroach but baulk at culling rabbits, we turn a blind eye to the truth of life with a disability and weep for tortured cattle.

Or maybe it’s the “simple sells” phenomenon. Sheep being tied and stuffed in the boot of a car is a pretty simple problem to recognize. A bull watching his peers being butchered isn’t hard to comprehend as wrong. But what kind of graphic visual image could capture the complexities of the lives of those with a disability? The 35-year-old quadriplegic forced to live in an aged-care facility surrounded by dementia patients; the 40-year-old cerebral palsy sufferer barred from a course of study because her parents wouldn’t give their consent; the mother who has to fight to get nappies for her 4-year-old son because he has ‘already used his quota for the year’; the family who, limited by how many oxygen tanks they can carry, have never in 35 years travelled more than half a day away from home because they are unable to afford the machine that would give their son a constant supply of oxygen; the parents who are informed that they are no longer eligible for a range of benefits because they no longer live in the right postcode; the father who worries, every day, what will happen to his son once he is no longer around to bathe, feed, toilet, move, lift, love, care for him…

It’s too hard. Much easier to stir the emotions with blood and wild eyes. Audiences will watch that. Audiences will take action against that. It’s graphic, and we get graphic.

But I say:

Dear 4 Corners, Sydney Morning Herald, Media decision-makers and consumers alike,

PEOPLE ARE ANIMALS TOO! People are being imprisoned in their own homes. People are being forced to give up their jobs to look after loved ones. People are living below the poverty line. People’s freedoms and choices are being crushed by a system that is broken, that is unsalvageable, that is doomed to crumble under a future where the disabled, for the first time, are likely to out-live their parents.

So let’s talk about them. Let’s listen to their stories. Let’s lift the veil of fear that has kept disability out of the spotlight for so long. Let’s confront the prejudice and misinformation that makes us turn away. Let’s look beyond the images, the faces, the broken bodies and see the people in need of our voices.

Go for your lives, support the cows – I have been a vegetarian for 20 years and I’ve sent my letter to Julia. But please, don’t turn away from people as you do so. They may not be cute and furry. They may not be bound and beaten. They may not be tormented before being put to death, but they are being failed by their country, by OUR country, and if we continue to let them fend for themselves, our silence will be our complicity in that failure.

Register your support at http://www.everyaustraliancounts.com.au/, register for the Sydney City to Surf – team NDIS NOW, spread the word to every person you know, link up, send out, stand up and speak out.

No suffering should ever be ignored.

National Diasabiltiy and Carers Congress – 1

I feel like I am on the brink of something. Something big.

My eyes are open in a way they haven’t been in a long time. It’s an almost visceral awareness of the people around me. People. All people with their own stories and thoughts spinning through their minds, with their own fears and hopes and passions. There is nothing that separates me from them. We are all, essentially, the same.

These two days are going to be challenging for me. They are going to introduce me to a way of living that, up until now has been shaped in my mind by stereotypes, assumptions and my own ignorance. But today my eyes are open and I can feel a common humanity pulsing through my veins.

Today, life for people with a disability and their carers are beginning to change.