I’ve been gone… for a long time.
I’ve been doing… a lot.
What I’ve been doing has been… challenging.
I’ll be back… soon.
I just have to… clear my head of the stuff I want to write about but cannot write about here.
I miss you… lots.
I know I said my blog was changing. I know I said it would no longer be just a litany of reasons why motherhood is so damned hard and so damned exhausting and so damned infuriating, but how was I supposed to know that my toddler would choose to grow down instead of up? Nobody warned me about regressive behaviour! Nobody told me that my Little Lion would REFUSE to be anything but a baby. And I mean that literally.
He refuses to speak. Instead he says “me-me-me-me” in varying high-pitched tones, expecting me to spend my life trying to interpret his constant pretend conversation. What a fun game!
He refuses to walk. Instead he crawls through the mud in the back yard until he is close enough to me to moan, “me-me-me-me-carry-me”. We went through five outfits the other day, simply because he refused to walk. Ain’t that a fun fun fun game!
He refuses to eat. Instead he whines ”me-me-me-me-feed-me…” every single meal, expecting me to sit between him and The Blossom, alternately shoveling mouthfuls and cursing the mess my two babies spit and toss on the floor. What a fabulously fun game!
He refuses to go to bed. Instead he screams for the bottle he gave up nearly six months ago and the sleeping bag that he hasn’t used in more than a year. He expects me to sit in his doorway until he falls asleep and screams the house down if I so much as go to the toilet. And did I mention the frequent night waking? And the fact that Mr D has been completely barred from helping because only Mummy will do? What a top-shelf-fabulously fun game!
He will not consider the potty where some six months ago he was absolutely interested. He couldn’t stand a dirty nappy and he told me what he was doing when he was doing it. Now he lies and says he hasn’t done anything when the whole universe can smell it. When I check and correct him, he claims that more is coming, and when I finally take charge to change him, he screams like I am about to rip his legs off. What a top-shelf-fucking-fantastically-fun game! Especially that he can’t start preschool until the nappies go.
So I am looking down the barrel of an eternity with a petulant, frustrated, button-pushing, heart-breaking, tantrum-throwing ‘Baby’ who is, on some level, choosing to stay “just little”. Why???? I am tired. I have nothing left.
I know he has had a rough time at daycare – we took him out four/five weeks ago and we thought that had made all the difference. He’s home with me. He goes to Nana’s. He is happy – or at least that’s what we thought.
I know he has developed fears – we have done and are doing everything in our power to allay those fears, but I draw the line at having every fucking light in the house on all night. Fears are a normal developmental stage, I get that, but surely not to the point where he doesn’t want to be a big boy any more?
I know that having a sister is a hard thing to come to terms with, but she’s been around for over a year and she occasionally needs her nappy changed too! Get the fuck over it – she’s here to stay so you can stop shoving her, smothering her, lying on top of her, trying to pull her arms off… and copying her, for God’s sake!
I praise grown up behaviour. I point out all the benefits of being big. I give him options. I give him control in every area that I can. I try to listen. I try to be patient. I reinforce our boundaries with a kind-but-firm touch. But sometimes there is just no more fuel in the tank, I’m afraid. So now I just want to cry.
What can I do? How can I make the idea of being a big boy even vaguely appealing to a Lion who roars that he is “NOT A BIG BOY! I BABY!” What have I missed?
Because I’m going fucking nuts here…
Today I ran a hill in the rain.
It was hard
And it was cold
And it was liberating
And it was exhilarating,
And never again will I shun
The tiny needles of water
That pierce the eye and make the world seem new.
Today I ran a mountain
And will never be the same.
What can I do? How can I help? I have so little time, I have no skills, I’m not a sales person…
The NDIS is a cause whose time has come, but to get government to take this crucial step in overhauling a disability services system that is catastrophically failing so many Australians, we need numbers. We need people to put up their hands, to say “I support this idea”, and all that means is adding their name and email address to the website. So, here are a few ideas of things that you can do to help get those numbers. Whether it’s an email to friends or a morning tea, an article in the school newsletter or a presentation at the P&C meeting, every little bit helps.
The Little Things that make a difference:
- Collect registrations on the EAC postcards at your playgroup, sporting club, school P&C meeting, church group, etc.
- Leave registration postcards and information in the common room
The Medium-Sized Things that make a difference:
- a letter to the editor, a feature story, an opinion piece, etc
The Big Things that make a difference:
- Contact the community liaison department and discuss the best forum for this. It may be at a council meeting, at a public forum, or a private submission to the General Manager and/or the Mayor. Be clear on what you would like them to do: host an event; to be included in the program for an even already planned; awareness raising through rates notices mail out; letters of support to local members of parliament
- Just like the council, make sure you are clear about what you want them to do to help promote the campaign - Airtime on their radio program; endorsement of the campaign in media appearances; Mentioning the campaign website in interviews, on air, at concerts, etc; Wearing the EAC t-shirt or badge at events
- Again, be clear on what you want – Website links to the campaign website; Banner displays in shop fronts or offices; Branding (like the pink ribbon campaign) on selected goods; Post card display on shop counter… (the key with these big strategies is not to bite off more than anybody can chew. Gauge your level of influence carefully – if you have known the store manager personally for years, ask for the world, but if you’re cold-calling, keep your requests modest – you can always build on a counter-top post card display, but you can’t turn a flat ‘no’ to a ‘yes’).
No matter what you choose to do, do it with passion, with enthusiasm and with belief. No matter how you choose approach spreading the word, make it personal. No matter what level you feel you can contribute at, know you will be helping to bring about a change for the better in the lives of millions.
Cows have been getting a lot of press lately. Specifically, animals that are being exported live to places where standards of slaughter are brutal at best. The ghastly images from 4 Corners are all over the papers, they’re pouring into my inbox and they make me sick. No creature should have to endure that kind of torture and I wholeheartedly support any legislation that will offer some kind of protection to animals that are helpless in the face of such human brutality.
But this week’s outcry against the barbaric treatment of animals has had me feeling… I don’t know, kind of frustrated. I’m not frustrated at my own powerlessness or at the fact that such inhumane practices still exist (and flourish) in other parts of the world, but I couldn’t quite put my finger on exactly what was making me so uneasy until today.
You see, after Monday night’s 4 Corners story, I was stewing over the graphic images of those pitiful doe-eyed creatures with their velvety noses and big floppy ears being tortured in blood-smeared rooms when I checked my email for the four-hundredth time in a week. I was looking for a response to an email I had sent to the director of the Every Australian Counts campaign for an NDIS some 12 days previously.
Having had a bit of experience in promoting stuff, doing events, yadda-yadda, and having had some (if I do say so myself) pretty kick-arse ideas and strategies for getting maximum bang for minimum buck to spread the word to millions, I decided to whip together a proposal and send it to the boss – a promotion strategy on a platter where, by the boss’ own admission, there was no real strategy.
Did I get a response? No. Nothing. Not even a “Thanks for your email. We’ll be in touch.” Total, resounding silence that could only mean one of two things – a) he thinks I’m a nutter who needs to be steered clear of, or b) he never got the email because he is on holidays (it’s called auto-response) or the evil internet ether virus swallowed it whole and sent it directly to spam. Either way, I began to stew. Time is a-wasting…
So I sent another email to another one of the campaign team with a call to action and a number of questions. Again, no response. Silence on the airwaves. Grrrr.
The next day I registered for the Sydney City to Surf and decided, heck, I’ll action part A of one of my grand plans regardless of ‘approval’ from the campaign team. My idea was to gather together the largest ever team registered for the Sydney City to Surf, get each person in a red NDIS NOW t-shirt, fill the event with the message that the disability services system needs change now and that now is our chance to make that happen. But when it came time to choose my charity, the campaign was nowhere to be found. Why?
So I sent another email, and as I scanned my inbox for that elusive response, there were the cows, bleating madly all over my inbox and Facebook page. Dozens of invitations to send letters of disgust, to sign online petitions, to click if you’re outraged. And it struck me: the outpouring of concern for animals that were, let’s face it, born and bred for slaughter (of a humane kind, granted, but dinner plates and hand bags none the less) screamed against the stark silence from those who were meant to be driving the campaign for an NDIS. Why?
Is it because those whose passion lies in animal welfare are just better at the publicity thing? Do they have more campaign funds at their disposal? Is it because the bill is before parliament and there will be an equal uprising for disability in July when the Productivity Commission delivers their final report on an NDIS to government? I doubt it.
Perhaps it is because of what I call the “fuzzy factor”. Animals are cute. They are easy to love. But there is noting cute or easy to love about disability. It is confronting and uncomfortable and painful to look at no matter what angle you tackle it from. So, in the same way that we casually spray poison gas at a cockroach but baulk at culling rabbits, we turn a blind eye to the truth of life with a disability and weep for tortured cattle.
Or maybe it’s the “simple sells” phenomenon. Sheep being tied and stuffed in the boot of a car is a pretty simple problem to recognize. A bull watching his peers being butchered isn’t hard to comprehend as wrong. But what kind of graphic visual image could capture the complexities of the lives of those with a disability? The 35-year-old quadriplegic forced to live in an aged-care facility surrounded by dementia patients; the 40-year-old cerebral palsy sufferer barred from a course of study because her parents wouldn’t give their consent; the mother who has to fight to get nappies for her 4-year-old son because he has ‘already used his quota for the year’; the family who, limited by how many oxygen tanks they can carry, have never in 35 years travelled more than half a day away from home because they are unable to afford the machine that would give their son a constant supply of oxygen; the parents who are informed that they are no longer eligible for a range of benefits because they no longer live in the right postcode; the father who worries, every day, what will happen to his son once he is no longer around to bathe, feed, toilet, move, lift, love, care for him…
It’s too hard. Much easier to stir the emotions with blood and wild eyes. Audiences will watch that. Audiences will take action against that. It’s graphic, and we get graphic.
But I say:
Dear 4 Corners, Sydney Morning Herald, Media decision-makers and consumers alike,
PEOPLE ARE ANIMALS TOO! People are being imprisoned in their own homes. People are being forced to give up their jobs to look after loved ones. People are living below the poverty line. People’s freedoms and choices are being crushed by a system that is broken, that is unsalvageable, that is doomed to crumble under a future where the disabled, for the first time, are likely to out-live their parents.
So let’s talk about them. Let’s listen to their stories. Let’s lift the veil of fear that has kept disability out of the spotlight for so long. Let’s confront the prejudice and misinformation that makes us turn away. Let’s look beyond the images, the faces, the broken bodies and see the people in need of our voices.
Go for your lives, support the cows – I have been a vegetarian for 20 years and I’ve sent my letter to Julia. But please, don’t turn away from people as you do so. They may not be cute and furry. They may not be bound and beaten. They may not be tormented before being put to death, but they are being failed by their country, by OUR country, and if we continue to let them fend for themselves, our silence will be our complicity in that failure.
Register your support at http://www.everyaustraliancounts.com.au/, register for the Sydney City to Surf – team NDIS NOW, spread the word to every person you know, link up, send out, stand up and speak out.
No suffering should ever be ignored.
Posted in About "Normal" Life, Uncategorized | Tagged animal rights and human rights, brutality and suffering, charities, City to Surf, Disability, Every Australian Counts, Live Animal Exports, NDIS, promotional strategies | 10 Comments »